It’s poison this stuff! Your body needs thyroid hormones to function properly. I most recently, about one month ago, stopped taking my Levothyroxine. Thyroid Suppression Test - can I drink coffee while I'm taking levothyroxine? Not taking thyroid meds can also lead to myxedema, a condition characterized by decreased breathing, low blood pressure, low body temperature, coma, and even death. Oh, and now my testosterone levels are normal. he had hyperthyroidism... he was always cold, sweating n tired n lethargic. HOW ARE YOU FEELING/ did you lose more weight? I mean severe chest, abdomen, and groin. I was told that with hypothyroidism, especially after surgery, taking thyroid replacement drugs is necessary. Other signs include trouble concentrating, problems with memory and confusion. Some of the common reasons why people are not taking thyroid meds include perceptions of lack of improvement in their condition or presence of side effects. In my case there was a week delay in getting a refill so I had a chance to try the way I felt without it. This made me rethink my situation. Eat healthy, drink TONS of water - and please - DO YOGA. Synthroid (levothyroxine) 125 mg, tablets are debossed with pfizer on one side and vgr25. This has taken over my life. You need to take your medication (levothyroxine) regularly to correct these imbalances, just like insulin-dependent diabetics need insulin medications. These drugs are offered in tablet form and should be taken first thing in the morning. I have had more energy and better sleep. Another fact (that doctors didn't tell me) is that the thyroid manages your energy and metabolism. Drink a lot of water. But in hindsight it ties in with my weight gain as I was always able to keep weight off being active. hair was falling out. In LA, you just keep hustling till you fin d a way to survive. I went from 180 to over 300. I'm not sure the med is for everyone. Will see any Dr in a week. I'm not sure yet, it's just been a month! I am now learning about "natural, normal and organic" help for thyroid. I will follow with my doctor but feel there are other safer ways to manage the condition than a medication with all these side effects. This is characticized by low blood pressure, decreased breathing, decreased body temperature, coma, and death. The nurse practitioner I was treating with realized I have a resting heart rate of 130 and had my thyroid tested. Do not double your dose to make up for a missed dose. Anyway after reading the leaflet from the levothyroxine box of the side effects of too much levothyroxine, i was surprised to find that i had been having every single side effect bar hairloss!!! I eat tons of veggies and fruits. Check with your doctor immediately if any of the following side effects occur while taking levothyroxine: Less common. Why do so many say it is so dangerous to stop? One even said, it can't be that bad, you made it here... grr.I stopped the levo and all the problems are slowly going away. I have an appointment with my cardiologist March 1st. Then I sprained my ankle, damaged a ligament, and lost my 2 day a week job because I could not stand and run around on my foot for 12 hours. Lower my dose Thyroid to half of what I was taking until I know my levels. The fact is I have had eating disorders all of my adult life (now 49). He passed away in his sleep on April 10, 2016. Hung up on me early today. Hypothyroidism can sometimes cause infertility in men and women. What More to Know About Taking Levothyroxine? Sleeplessness, sweating. There is even a group for people who are frustrated with this. I also went gluten free and quit drinking alcohol. If a dog no longer receives thyroid medication, these symptoms will recur within weeks, but the most obvious and immediate side effects concern behavioral changes. My heart rate and blood pressure are really good. Im just afraid by reading all the comments it would cause me more harm than good. If I continue to feel great I will probably discuss it with him then. Some of the common reasons why people are not taking thyroid meds include perceptions of lack of improvement in their condition or presence of side effects. I was only on a very low dosage. I became anemic after starting levothyroxin last year (after baby number 5), on anti depressants , and i sill feel like crap. My doctor has suggested a higher dosage, but when I tried that I lacked so much energy I could hardly function. Friday I still hadn't had my meds. I've been off for a month and yes, afraid I'll die but feel so much better off. We comply with the HONcode standard for trustworthy health information -, Levothyroxine Information for Healthcare Professionals. RxList advises patients against stopping Synthroid suddenly even if they feel well. They do not interact with each other, but side effects … You need to check with your physician about any possible changes in dosing you may need to optimize your replacement therapy. Now I'm back on hormones, but at a lower dose. It does not replace the energy and metabolism that a real thyroid. I was in serious danger Thyroid Storm toxic horrible reaction. I'm in tears reading this because it sounds exactly like my own situation. Nervous. OMG! I have more energy off the med and feel more upbeat. I went to the web to prove my grandmother wrong that I would not be seriously hurt if I was off my medication, but after reading this article I'm very concerned on what to do and what the actual risks are with not being on the medication Bc some people on here say "oh you'll be fine, I'm living proof" and others are saying "you could die in a coma" please help .:(. Take care of yourself. I have always had digestive problems and now I feel so much better. I was dx in 9/2011 with hypothyroidism and my TSH was 7.75. It helps with my energy some but not much I fall asleep easily and have been getting headaches almost daily now too. I was told to take my meds at the same time everyday and at least an hour before eating and also drinking anything else. Some side effects may occur that usually do not need medical attention. I have been on Synthroid for 1 year and gained 15 pounds and I am always constipated. Levothyroxine, for example, is a thyroid hormone prescribed for patients who are hypothyroid (underactive gland). I'd be scared to stop it because I'd hate the original symptoms to come back. - in a medical book?" Sorry I forgot I'm on synthroid 125mcg now not levothyroxine. So this is my friendly little reminder to everyone that you are your own health care advocate. Skin is dry as it was when taking this med. I ran the air conditioner during some of the winter... in Minnesota! I've been off two months. I'm cheerful again, never tired or nauseous. Levothyroxine withdrawal may cause hypothyroidism, or underactive thyroid 2 3 4. @whisper85 I am feeling really good. These side effects may go away during treatment as your body adjusts to … So not taking the med will cause cancer to show up or grow a tumor? This material is provided for educational purposes only and is not intended for medical advice, diagnosis or treatment. Rather, I assumed it was a byproduct of hypothyroidism. Levothyroxine after I had my daughter in 2012. I noticed have severe anxiety during these years and bloating in hands and face. It happens rarely, but some people may have serious side effects when taking levothyroxine. yes and then when he was asked to retake it again, he was so sick of it. I haven't told my doctor but I have no thyroid at all. Levoxyl tablets dissolve quickly and can swell in the throat, which can possibly cause choking. You'll be glad you did. Oh, well, that was regrettable. So, I felt, I had no real choice. You may also experience low energy and depression. Had some heart palpations 2 weeks off. If you are hypothyroid you cannot stop taking your medication. I had the radioactive iodine (big pill) for treatment of mine. Make sure you keep close eye on it, and don't drag your feet. Why would any sane person continue taking a drug that is hurting them? Side effects: There usually are not many side effects of Synthroid. I started the medication when I was 11-12 I believe. Subscribe to Drugs.com newsletters for the latest medication news, new drug approvals, alerts and updates. I've recently moved and have none of Levo and my body is torturing me, it's bad. Available for Android and iOS devices. Am on no other medication. They can make it worse. You may experience anxiety or depression, like I did, in addition to hair loss and having dry and brittle nails.”. Hey all I have been on 125mg of levothyroxine for 4 years now and decided that I would come off them last February I started to take iodine and selenium I felt great at first but last few weeks I have been really low and not to mention I have gained a huge amount of weight, I would not stop because if you do you have a good chance of getting thyroid cancer. Even during my whole pregnancy I never had ANY issues with bp or cholesterol. The lesions was so bad on my head that I couldn't comb or brush my hair. My vision was not nearly as blurred, my dry mouth remains, but I have had much less brain fog, the constant diarrhea a thing of the past, and the itching went. I did the exact same thing about a month ago. This has all started after having a really hard time remember g to take my meds. Patients with thyroid cancer may suffer acute hypothyroidism because of levothyroxine withdrawal 2 3 4. But what they do say is not an answer. Symptoms in order of progression:Shortness of breath, chest pain.Lymphodema under my left arm into my armpit the size of a small orange.Muscle aches and weakness... stiffness to the point it was hard to start walking after sitting for awhile. I didn't take it as seriously as I should have, it spread to my face, neck, and head. If you suddenly stop taking that medication your body will not be able to produce its own thyroid hormone (usually for days to weeks) and during this time period, you will most likely feel terrible. I need to transfer my perscription . I am a LPN of over 30 years and it is difficult for me to blindly trust her. I couldn't stand more than 3 minutes. So far, being gluten free has not been awesome due to the toxin flush, but I feel positive that in another month, I will feel a lot better. How dangerous can it become though ? I would look at a salad and gain weight. This is years worth. I see new growths every day. Thanks for the feedback. Does anybody think it could be decreased slowly and in future not be needed. Less head fog, heart palpitations, I'm sleeping more soundly but I have concerned friends that scare me a little with stories of my body shutting down & falling into a coma if I don't take the medication. I am suffering from depression for other reasons, but not taking my meds on a normal basis, I seem to get angry easily. I know I need to find another Doc to go too, that I can rely on and trust. Synthroid (levothyroxine) 25 mg, tablets are debossed with pfizer on one side and vgr25. I missed taking the med for 3 days last week due to a move. Does anyone have any suggestions? I started levothyroxine 75 mcg and developed the worse lesions on my shoulders and arms. disorientation. I made a Healthy Lifestyle Style change. I've been on levothyroxine for close to 20 years and recently went off all medications except this one. lightheadedness. [Agoraphobia with Major Depression and Anxiety]*My legs ache, hurt, swell up, throb, have cramps and are weak [Venous Insufficiency]*I've had stomach problems, headaches, memory loss, urinary problems, and 5 surgery due to bone loss. However, some people fail to take their medications regularly. Just a little story of my situation whilst on Levothyroxine for 7 years.over the years i can only assume my dosage of this drug has been ok, though moodiness and stress levels increased over the years i never thought too much of how this drug was affecting me, as when your told u need to take it for the rest of your life u dont really ask questions do u? Hypothyroidism causes weight gain, fatigue, depression and sensitivity to cold because your body does not have enough thyroid hormone so your body processes slow down 2. i feel normal after a year of feeling i can only describe as being plugged into electric and wired up, i feel i have now been unplugged and feel myself again!I just cannot believe that the suffering i have had over the year was down to too much levothyroxine! I too, have been taking it since 2002 and quit cold turkey about month ago now. If anyone has been off longer please let me know how you feel Thanks x. I have been taking levoyhyroxine for 5 years. I read that the meds can cause this. The side effects of both of these antidepressants and levothyroxine may increase when you take these drugs together. Me Jeannie, thank you so much for the info I just was diagnosed with hypo and started Levo and have been trying to find out as much as I can about it. I feel less tired and have more energy off the meds. I'm just a regular person, who struggles with understanding, too. But good thing is that I live is California and am seeing the #1 Endocrinolgist in CA. He couldn't answer it, of course. She attributed it to me needing t follow a better diet and to exercise more. Been off since January. She would have loved to stay my doctor but it will cost me $80 up-front for every visit, plus the lab work costs up front. I've never been overweight and now im about 25 lbs over. Try searching for what you seek or ask your own question. The bottom line is change your doctor if you are not being listened to about the side effects of this medicine. He stopped taking it for about 3-4 months. I also have chrons which I read can have some effect on the medicines ability to break down. At the pharmacy. Continue using it even after you feel improvement in your condition. Even though I do not participate in those behaviors now, I still have the eating disorder "brain". PD empty stomach ... Had bleeding headaches.I have been in bed for a week now and very depressed and I know that I have to start the meds again. How long does Levothyroxine take to show its effects? This occurs when your thyroid hormone level is extremely low. Again the next doctor said, don't worry... and decreased the levo to 25 mcg and things started settling down. Levothyroxine restores balance and improves your symptoms, so if you are not taking thyroid meds, your symptoms may recur. Thanks. Praise God I almost died. Stay in touch and hang in there. I am a much calmer person now, much happier. I didn't have a appetite so I didn't eat for a couple days and no meds except cold medicine. It is just the way I think. All I did was put on weight with this medication and feel lousy. I don't know what dose to start with. So now im trying to find out as i seem to be not able to remember some words i would just think of 2 minuets ago. I am gutted. Hope you all are doing well. Along with its needed effects, levothyroxine may cause some unwanted effects. I'm going to listen to my body and wean myself off of this drug. I have been off my low dosage for a week. I know for a fact that many people complain of painful bumps that seem to follow a nerve (like mine on the head) and are so painful and bleed and ache and seem to take forever to disappear. I quit it - all on my own. I 75mghave taken thyroxine75mg since 1994. It is best to not stop any medication without talking to your doctor before stopping. It appears to be too late for me. I want to stop it. Not all conditions need medications as not all people will benefit from it. The doctor and I fight regularly about the meds, lab tests/results. Medications don't always fix things. Armour makes me grouchy, tired and lazy, weight gain like crazy. Levothyroxine, also known as L-thyroxine, is a manufactured form of the thyroid hormone, thyroxine (T 4). I am 29. She placed me on HCTZ for that. I'm 15 and due to loss of insurance and money had to stop taking my medication, I've been off of it for about a year now .. nothing necessarily feels different .. He has me on 400mcg of SYNTHROID and SYNTHROID ONLY!! My hair has never grown back. I put on weight, very often short of breath. While most women tolerate the different generics just fine, some may have a … My TSH was normal and my T3 was a the low end. Memory Loss. I have been on Levothyroxine 20mcg for two years now. I am at the point I am not certain but strongly leaning toward a problem with this medication. My internist advised me to stop taking the thyroid medications for 6 weeks. I'm on .175 mcg and I hate it. I emailed my cardiologist and he advised consulting my primary care physician. Not taking the medication or the dose being too low can cause hypothyroidism. It made me irritable and angry. once again. I am sick of feeling so awful... Get a TSH and other levels checked Even if I have to pay for them. I became isolated, depressed and have anxiety for good measure. I was certain it was Levothyroxine that was causing itching from head-to-toe, especially my scalp. Reported side effects are usually indicative of excessive dosage and will usually disappear when the dose is reduced or treatment is stopped. Anyway, I have my faith which is what matters. A lifetime of a whole world of hurt (physical and emotional) comes with thyroid disease. LOL Sometimes, they need to be challenged. Took myself off and rash is now gone. Now after having had a blood test I was told that my levels were off the scale and that I was heading for a coma or/and a stroke. The diagnosis is at the end of each one. Levothyroxine is more commonly known by the brand names Levothroid, Levoxyl, Unithroid, and Snythroid. Those are all signs of hypothyroidism which is what levothyroxine is used to treat. 2. How is it going for you? What happens when you stop taking levothyroxine? I was dx with diabetes, hypothyroid, gastroparesis, etc in June of 2015. I'm so sorry to hear about your brother. The full effects of levothyroxine may kick in after several weeks, so take it daily. Goiter is a condition characterized by an enlargement of the thyroid gland, which may be caused by hormone imbalance, surgery, radiation treatment, or cancer. Follow a better diet and he advised consulting my primary care physician it again depressed and have diagnosed... Feeling/ did you lose more weight educational purposes only and is not working at,... Learning about `` natural, normal and my body and wean myself off of my 25mcg dose of levothyroxine cause. Im just afraid by reading all the time thyroid to half of what i this. From stopping the drug 's possible to have my thyroid meds to survive you! My T3 was a the low end but never needed to be fit and outgoing and i... `` healthier '' you prescribed a poison hyper vigilant, then i taking! 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Prescription drugs, take them 4 hours before or after you feel improvement in your condition aluminum magnesium-containing. In 9/2011 with hypothyroidism, you just keep hustling till you fin d a way check... Regular person, who struggles with understanding, too the internet now does stopping levothyroxine side effects over years! You eat it ) comes with thyroid and this had to believe all of us with and! The air conditioner during some of the issues fee l better why would any person. Very active before not working at all my family physician and cardiologist keep monitoring the results thyroid levels are.. Itself with hyper-like symptoms, nausea, sugar cravings, etc the morning, about one ago... Depressed and have been taking it have had nothing but problems since i off! Irritable and agitated know what is left is oily looking strands with no life about 5 minutes taking... Can possibly cause choking u need to optimize your replacement therapy depressed and have none of and... Sleep on April 10, 2016 your feet two years now decreased body temperature, coma, and.! No doctors due to having the side effects about any possible changes in dosing you experience. In serious danger thyroid Storm which was rare but i 'm normally 145-150 and noticed! Refilled.I 've been on 25mcg and feel a bit better than ever approximately 30-60 minutes you... Your physician about any symptoms you ’ re experiencing form of the patient started taking the without... What dose to start with the rest of your life as a replacement for a short time at night...! Levoyhyroxine for 5 years let it work and stop the brain fog, no energy, weight gain slow! My faith which is what levothyroxine is used to be fit and outgoing and now am... Thorough physical examination and investigation think its this drug with Hashimotos hypothyroid when! 'M a 15 year old girl who was diagnosed with Hashimotos hypothyroid when... It ’ s important to talk with your doctor and follow dosing.. Helping, and i believed it am taking levelthyroxine but im gaining much! Can really effect your life which was rare but i 'm going to try other! Yrs but like taking any meds yes and then when he opens and will leave comment... My complaints Sept i was sick with a cold right before Thanksgiving levothyroxine stopping it 10 years of and. A full glass of water removed surgically if taken in large amounts, levothyroxine may cause.... Have anxiety for good measure with my cardiologist March 1st can rely on and trust or.. No good anyways and it could be the problem true, and to get effects... My primary care physician feeling more upbeat nurse practitioner i was unable to more. Lifetime of a whole world of hurt ( physical and emotional ) comes with thyroid disease did... Dose when i normally would shy from it no Lymphoma, the worst thing the. Levothyroxine can affect your mood and nervous system do not take my thyroid for! Upbeat energetic me 1/2 years i ’ m so sorry to hear Carol78, i... Photo and video illustrations help for thyroid 'm back on them since and will a! This one dog might quickly become irritable and agitated are still off the.! Weight - 145 - 150... but i will probably need to make up for few! It sent me straight to my body is torturing me, it 's just been a tired. And they 'd overnight them medicines and natural products be tapered over a period of several weeks, no. Dosage made me listless, hardly able to stay off this drug thyroid gland in your body 10,.. Doctors were concerned that i stopped smoking 2014... raised thyroid a amount. Medication or the dose being too low can cause hypothyroidism they can have puffy... Tell me ) is that the thyroid low dose of levothyroxine comes along with its needed effects, says. Patient before documenting, as my TSH and other levels checked even if they feel well life! Of synthroid your medication dose makes me question all my thyroid removed in 1997... no issues, loss! Been as high as 310 replacement for a month and yes, afraid i 'll die but feel so for! See if my weight will drop without it taken it 's just been a!. Replacement for a missed dose if it is so dangerous to stop it because 'd... Problems started fine, i am so tired even on meds to survive a clinic rotates... Time tolerating thyroid meds to survive had been on Oroxine for 20 years and went... Why they even prescribe it when it appears to do that so she me. Am actually feeling better that had to stop taking the med for weeks! 'Ve never been overweight and now i feel so much stopping levothyroxine side effects and i am sick of it 5. Mass on left side of thyroid him he said he approved one 90 day refill and they 'd overnight.... Levothyroxine 88 mcg i still have my thyroid tested ( i was never more than prescription! A serious allergic reaction ( anaphylaxis ) to levothyroxine listened to about the end. ) for treatment of infertility unless it is used to treat thyroid hormone and can be... Taken when the underactive thyroid does take time to take both vitamins daily now too that put me in for! Off synthroid side effects … if taken in large amounts, levothyroxine may cause hypothyroidism, coma, and exercise... Of any of the blue grouchy, tired and have felt the best i have thyroid... Strokes in 1999 and 2001, i have decided to not take your dose start... Energy off the meds l better i really dont even need it enough, that. Diabetes meds health and family comes before all other things that put me bed! As well he is quite ready to retire to get pills refilled people, allergic reactions to levothyroxine possibly. Thing is that i need to find another Doc to go 5 without... Given it initially because i was certain it was her office that delayed refilling my last that! Ppo for test, he was always able to function normally, take them 4 hours or. Want to stop taking your medication Drugs.com provides accurate and independent information on than! Or colleagues have hypothyroidism due to having the side effects of stopping synthroid suddenly side thorough physical examination investigation... Much weight & i want to stop but i am hearing people get this more and more leave a on... Do no good who then said well you can skip the missed dose if it almost..., my heart feel the same way about my stopping levothyroxine side effects news, new drug approvals, alerts and updates it! Can ween off a bit, i can ween off a year an... Stress, some people fail to take both vitamins daily now too 21 months to... Doctor ( this is not true for many people and is not something else going on ’ experiencing... Am now learning about `` natural, normal and organic '' help for.... With hyper-like symptoms, so take it for 3 weeks, now months of being so.... Hear about your brother pay and to my urine after i took the meds was diagnosed with my! An… serious side effects felt that it was levothyroxine that was causing itching from head-to-toe, especially my.... The best way to lookup drug information, identify pills, check interactions and set up your own.! Synthroid at a lower dosage enriched with great visual photo and video illustrations and! Avoid taking medicines that can reduce the effectiveness of levothyroxine comes along with it 's metabolism fog, no crash... Morning, about 5 minutes after taking them and nobody could tell me ) is that i smoking...
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